Overview

I’ve been through similar struggles, and doing small things that bring me comfort helps a lot. One unexpected thing that’s worked for me is trying natural stuff like THCA distillate wholesale. It doesn’t fix everything, but it’s made a difference alongside therapy and journaling. Just having something that relaxes me without making me feel off is a huge deal on the rough days.

anyone has found specific daily routines or small habits that help lift the heaviness, even a little???? I've started writing down one good thing each day, even if it's just “I got out of bed,” and it's helped me feel less stuck. Curious what others do when things feel overwhelming or too quiet.

You are exactly right, most people do not know what its like to face a battle they cannot see. Just remember you have so many people behind you and we are so proud of you ❤️

Hello to all you amazing, wonderful people on here! As many of you know I have recently been diagnosed with M.S. (multiple sclerosis) something I never thought I would ever be diagnosed with. Over the first couple weeks Ias fine was, no big deal I walked like nothing was bothering me. But now, now everything is sinking in, this is real, it's very real, the evidence is all around me and there is nothing I can do about it. I can't run from it, I can't hide from it, and I can't pretend anymore. My doctors have been calling me more to discuss all of these things I will have to be doing soon and it's too much, it's just so much and I just don't want to have to deal with any of it. I can't sleep, because all I do now is cry, I can't eat because my stomach is in knots so now, I am literally sinking. I feel like I am drowning on land, and I just keep smiling because that's who I am. I am a positive person I don't have time to sit down and cry, I don't have time for this to come into my life, I don't have time for any of this. So now what? What do I do now? Where does this leave me? Will I still be me? Will this change everything about me? Will I lose everyone because of this? Fears keep coming into my mind, and I push them down telling everyone I'm fine because that's who I am. But now everything is not fine, I am terrified, I am terrified of going through more spinal taps, I am terrified of having to sit through more treatments, I am terrified of losing my memory and forgetting everyone I know. So many fears weigh heavily on me, but I keep going because that's what I do, that's who I am. I am so tired of being scared, I just want to finally be able to sleep without the constant feeling of fear racing in my body. M.S. sucks, mental health sucks, cancer sucks, health problems sucks, and well they just suck. Thank you all for allowing me to rant and get that off my chest None of you on here are alone, I promise, we will get through this one day at a time Anna ❤️

While I also use "spoons", and most, if not all of my friends, RL and Digital, know the Spoon Theory, I have begun using a different term that in this digital day and age seems more appropriate and just as easy to understand, and I don't have to explain it to anyone not familiar with the Spoon Theory. "Bandwidth" While I may have the spoons to hang out, IRL or online chat, I don't always have the bandwidth to get into "that" right now.

Fantastic 👌

Thank you again! I finally got my infusion yesterday- hooray! I was pretty exhausted most of the day after that, and a little bit this morning, but I'm already feeling a bit better

That really stinks! I can't go out and just stay in it. But mine is due to a medication i take. I hope you find out what causes that for you. I know it's gotta be miserable!

does anyone have sun sensitivity? If so do u break out in hives? Last summer my arms broke out terribly everytime I went outdoors even just to the store. The drs were stumped said no clue why just gave me steroids because they got so bad. Now its starting again. Sunscreen doesn't help. What does everyone do to help?

Ohhh,yeah..I'm sorry to hear that. Such a frustrating thing these meds and insurance,and the like. I do hope things start to pan out better very soon🙏 And you're quite welcome ✌

I've actually now had a pretty bad setback the past few nights, but thank you. Yeah, they are pretty crappy, and even harder to deal with when your medication is repeatedly delayed

Those nasty chronic pain insomnia, and disease like issues are so crappy.Im glad you're feeling a touch better 🙏✌

Good to hear!

Thank you both! It was definitely a rough night, but I'm feeling a little better this morning

@lilpincess I'm sorry you had so much pain. I wish I could take it away for you. But I'll send prayers and hugs

I'm sorry, sending hugs

The pain is really bad tonight and it makes me feel really sad and lonely and broken

so frustrated. I have a few great days where I can do things and actually have energy then Im right back to pain, not feeling good and weakness. I need to work on the housework today to get it ready for summer to put the air conditioner in but after going oyt yesterday I miss want to sleep today. Its frustrating because I promise daddy Ill get something done then he gets upset I cant do it... He supports me and all but first fully yet how I feel..

granted but its the size of a sliver I wish it would never rain again

to fit into their clothes easier Why is the sky blue?

woes

I'm so sorry you are going through so much. Feel free to message me if you need to talk more.

*taps mic* I have no idea if anyone will read this, let alone respond. I'm in a bad headspace and just need to scream into the void for a second, so bear with me. I'm so godsdamned tired of hurting. A friend of mine (who is also a spoonie) sent me a tiktok not too long ago, that said "The normal level of pain is ZERO." That not even 15 second video absolutely wrecked me. Zero pain? What even is that? I sat for probably about an hour the day I was sent that and honestly tried to recall the last time I didn't feel pain. Answer: I DON'T FUCKING REMEMBER. Because even as a child I felt this pain, not as bad as it is now, but it was still there and very real. I very clearly remember telling my doctor that I was in pain when I was maybe 7 or 8 and his response was that I shouldn't lie to get attention. After that I learned very quickly that no one would believe me, my own parents didn't even believe me. How could a child know what pain is? I didn't LOOK sick. And if you don't look sick, you aren't sick. You're exaggerating. You're a hypochondriac. You're dramatic. Ultimately, you're just full of shit. You want to know what happens to a kid when they are told over, and over, and over again that they couldn't possibly feel what they say they're feeling? That kid believes that. I internalized that. To this day, I downplay my pain. I hide my exhaustion behind humor. I disguise my misery with a smile. Being gaslit my whole childhood about my own experience just lead me to not get help. EVER. Why would I? No one believed me before, what would be different now? I've only just recently gone to the doctor for the first time in nearly 10 years. It was the same doctor that my friend (mentioned earlier) goes to and this doctor is the FIRST to actually listen, to believe me, to look at me and say "this isn't ok, you aren't imagining this." Which is amazing, don't misunderstand. But it's hard to have hope that anything will actually get better. That's all I really want. I don't want the world. I just want to be okay. I wish that didn't feel so impossible.