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About This Club

The spoon theory is an analogy which equates the amount of ability that someone with chronic illness has to complete daily tasks to a limited number of spoons. People with chronic illnesses who must ration their energy throughout the day are sometimes referred to as "spoonies". ( Learn more: butyoudontlooksick.com) This is a club where spoonies with both physical and mental illnesses can talk about the challenges that we face living with a disability or chronic illness. **Ask about FB group**
  1. What's new in this club
  2. EyesOnFire

    Bad night

    Fantastic ๐Ÿ‘Œ
  3. lilpincess

    Bad night

    Thank you again! I finally got my infusion yesterday- hooray! I was pretty exhausted most of the day after that, and a little bit this morning, but I'm already feeling a bit better
  4. Juju

    sun sensitivity

    That really stinks! I can't go out and just stay in it. But mine is due to a medication i take. I hope you find out what causes that for you. I know it's gotta be miserable!
  5. lillizzie24

    sun sensitivity

    does anyone have sun sensitivity? If so do u break out in hives? Last summer my arms broke out terribly everytime I went outdoors even just to the store. The drs were stumped said no clue why just gave me steroids because they got so bad. Now its starting again. Sunscreen doesn't help. What does everyone do to help?
  6. EyesOnFire

    Bad night

    Ohhh,yeah..I'm sorry to hear that. Such a frustrating thing these meds and insurance,and the like. I do hope things start to pan out better very soon๐Ÿ™ And you're quite welcome โœŒ
  7. lilpincess

    Bad night

    I've actually now had a pretty bad setback the past few nights, but thank you. Yeah, they are pretty crappy, and even harder to deal with when your medication is repeatedly delayed
  8. EyesOnFire

    Bad night

    Those nasty chronic pain insomnia, and disease like issues are so crappy.Im glad you're feeling a touch better ๐Ÿ™โœŒ
  9. Juju

    Bad night

    Good to hear!
  10. lilpincess

    Bad night

    Thank you both! It was definitely a rough night, but I'm feeling a little better this morning
  11. Juju

    Bad night

    @lilpincess I'm sorry you had so much pain. I wish I could take it away for you. But I'll send prayers and hugs
  12. lillizzie24

    Bad night

    I'm sorry, sending hugs
  13. lilpincess

    Bad night

    The pain is really bad tonight and it makes me feel really sad and lonely and broken
  14. lillizzie24

    frustrated

    so frustrated. I have a few great days where I can do things and actually have energy then Im right back to pain, not feeling good and weakness. I need to work on the housework today to get it ready for summer to put the air conditioner in but after going oyt yesterday I miss want to sleep today. Its frustrating because I promise daddy Ill get something done then he gets upset I cant do it... He supports me and all but first fully yet how I feel..
  15. lillizzie24

    Corrupt a wish

    granted but its the size of a sliver I wish it would never rain again
  16. lillizzie24

    Wrong answer game

    to fit into their clothes easier Why is the sky blue?
  17. lillizzie24

    one letter game

    woes
  18. I'm so sorry you are going through so much. Feel free to message me if you need to talk more.
  19. Redneck-Kitty

    Funny

  20. *taps mic* I have no idea if anyone will read this, let alone respond. I'm in a bad headspace and just need to scream into the void for a second, so bear with me. I'm so godsdamned tired of hurting. A friend of mine (who is also a spoonie) sent me a tiktok not too long ago, that said "The normal level of pain is ZERO." That not even 15 second video absolutely wrecked me. Zero pain? What even is that? I sat for probably about an hour the day I was sent that and honestly tried to recall the last time I didn't feel pain. Answer: I DON'T FUCKING REMEMBER. Because even as a child I felt this pain, not as bad as it is now, but it was still there and very real. I very clearly remember telling my doctor that I was in pain when I was maybe 7 or 8 and his response was that I shouldn't lie to get attention. After that I learned very quickly that no one would believe me, my own parents didn't even believe me. How could a child know what pain is? I didn't LOOK sick. And if you don't look sick, you aren't sick. You're exaggerating. You're a hypochondriac. You're dramatic. Ultimately, you're just full of shit. You want to know what happens to a kid when they are told over, and over, and over again that they couldn't possibly feel what they say they're feeling? That kid believes that. I internalized that. To this day, I downplay my pain. I hide my exhaustion behind humor. I disguise my misery with a smile. Being gaslit my whole childhood about my own experience just lead me to not get help. EVER. Why would I? No one believed me before, what would be different now? I've only just recently gone to the doctor for the first time in nearly 10 years. It was the same doctor that my friend (mentioned earlier) goes to and this doctor is the FIRST to actually listen, to believe me, to look at me and say "this isn't ok, you aren't imagining this." Which is amazing, don't misunderstand. But it's hard to have hope that anything will actually get better. That's all I really want. I don't want the world. I just want to be okay. I wish that didn't feel so impossible.
  21. Curious Leo

    FB_IMG_1665499694946.jpg

    Can I say that these are so cute an funny? Hopefully itโ€™s not offensive to say that. some are very relatable as well especially the Mrs potato head. while I do not have fibromyalgia, I do have RA, I know itโ€™s not the same. so hopefully it is okay that I joined this club and I am commenting on this post. am I allowed to add photos of old comic strips that have similar reference or do I have to have to create a new post? or create a new club to do that? or can I just add to this post?
  22. Hi hi, Tw: talks bout knee injuries and lower limb injuries. So recently ive been having a bunch of pain in my legs. Specifically my calves and my thighs. Whenever i walk my calves get this intense pain in them and my muscles feel tense and tight and its hard to walk. My thighs on the top recently started too so im in pain most the time when i walk. I really easily pull leg muscles too (the same as everywhere else in my body). I does have a history of one of my knees dislocating so im not sure if what im experiencing is from that. I dunno im just wondering if theres anyone else who has potentially had similar things so i dont feel so left out. I found it incredibly hard to work because of my leg pains as it means even the simpliest of tasks like walking to work hurts so much. I try to power through the pain, but sometimes it really is too much. (Im going to my docs after the weekend to seek help, im hoping they can)
  23. Redneck-Kitty

    one letter game

    Foes
  24. Redneck-Kitty

    This or That? (Game)

    Mountains Summer or Winter?
  25. Kali

    This or That? (Game)

    Milk... coconut. Yummmm!! Beach or mountains?
  26.  
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