Struggling with health limitations

[Little Nyx]

Yesterday, I got about a quarter of the RV pressure washed before my body went on revolt and by the time I had the hose put up and the pressure washer haphazardly tossed in the shed I was actively working to not puke due to over exertion. I am not doing well!!! The mental hit is as bad as the physical. My head keeps saying I'm too damned young for my body to react like this but logically I know I've been on an unstoppable slope down for years now. But an hour! An hour, including set up, clean up and sitting in a damned chair while spraying down the RV knocked me on my ass and threw me straight into a massive migraine! My neighbor called me shortly after I came in for our internet provider's phone number and thank goodness she knows the score and patienly waited for me to stutter my way through the conversation as I struggled to form coherent sentences. I put myself to bed right after that conversation, in the middle of the day, and slept for a solid 10 hours. Now, I'm barely moving and my heat pad is once again my bestest friend. This is not new to me. It's 25 years down a constantly worsening path. That doesn't make the reality check moments of "Well, crap! That's even less than what I could do before." any easier to process and accept. I've been able to manage basic upkeep on the outside of the RV (except roof) on my own the last few years by working in small increments over lengths of time while utilizing other accommodations. After yesterday, though, I really have no choice but to accept the fact that I will need to hire out for even rather simple chores now, too. 😭😭😭

[MissAnna]

@Little Nyx I truly am so sorry you are going through this, it's terrible when health issues knock you down. 

I'm glad you were able to get a hold of a provider that seen you so soon. If you ever need a friend to talk to, I was recently diagnosed with MS so, I understand having set backs. 

i wish you didn't have to go through this, I named my heating pad William, and when I get sore I shout I need William STAT lol

Please take it easy and rest as much as you need, we are all here for you 

[Daddy Bear 77]

I’m so sorry you’re going through this. Your post really hit home for me—I’ve also struggled with feeling betrayed by my own body and mourning what I used to be capable of. I spent years with untreated health issues, and I remember how hard it was to watch others do things I couldn’t, especially when people said things like, “You’re too young to feel that old.”

One thing that helped me (and continues to) is reframing how I measure effort and success, not by what others can do, or what I used to do, but by how I show up for myself now, within the reality I live in today. That shift opened up a lot more peace and joy.

Tai Chi and yoga helped too, especially with gentle strength-building, breath awareness, and learning to work with my body instead of pushing through pain. Tai Chi taught me how to use my whole body more efficiently even in small daily movements  and yoga helped improve my flexibility and reconnect me with my body in kinder ways. Both gave me grounding when I felt like everything was slipping out from under me.

If you’re ever curious, I’m happy to share what worked for me or even pass on advice from my Sifu  or just be someone who understands. Mostly But mostly I just wanted to say you’re not alone. Mostly, I just wanted to say: you’re not alone in this. I’m wishing you rest, relief, and all the gentle goodness you need right now.

Edited Friday at 11:09 AM by Daddy Bear 77

[Little Nyx]

10 minutes ago, Daddy Bear 77 said:

I’m so sorry you’re going through this. Your post really hit home for me—I’ve also struggled with feeling betrayed by my own body and mourning what I used to be capable of. I spent years with untreated health issues, and I remember how hard it was to watch others do things I couldn’t, especially when people said things like, “You’re too young to feel that old.”

One thing that helped me (and continues to) is reframing how I measure effort and success, not by what others can do, or what I used to do, but by how I show up for myself now, within the reality I live in today. That shift opened up a lot more peace and joy.

Tai Chi and yoga helped too, especially with gentle strength-building, breath awareness, and learning to work with my body instead of pushing through pain. Tai Chi taught me how to use my whole body more efficiently even in small daily movements  and yoga helped improve my flexibility and reconnect me with my body in kinder ways. Both gave me grounding when I felt like everything was slipping out from under me.

If you’re ever curious, I’m happy to share what worked for me or even pass on advice from my Sifu  or just be someone who understands. Mostly But mostly I just wanted to say you’re not alone. Mostly, I just wanted to say: you’re not alone in this. I’m wishing you rest, relief, and all the gentle goodness you need right now.

Thank you for your kind words, DaddyBear77.

I try very hard not to compare myself to others or how I used to be, but sometimes those thoughts worm their way in, especially when I'm feeling exceptionally low. I'm actually quite proud of myself for stopping when I did. Not too long ago I would have attempted to keep pushing even while knowing I shouldn't. 

I used to do yoga, and I know I need to get back into it, as much as I can. It really did help. I've been intrigued with Tai Chi for a while, but haven't really looked too deeply into it. It's far too easy to back burner things when I'm struggling day to day, even things that I know could be beneficial. Are there any websites or videos you would recommend? While in-person activities are often best, they just aren't a viable option for me.

[Little Nyx]

1 hour ago, MissAnna said:

@Little Nyx I truly am so sorry you are going through this, it's terrible when health issues knock you down. 

I'm glad you were able to get a hold of a provider that seen you so soon. If you ever need a friend to talk to, I was recently diagnosed with MS so, I understand having set backs. 

i wish you didn't have to go through this, I named my heating pad William, and when I get sore I shout I need William STAT lol

Please take it easy and rest as much as you need, we are all here for you 

Thank you, MissAnna! Your support means a lot to me. I like the idea of naming my heating pad. I generally just refer to mine as my bestest pal.

[MissAnna]

6 minutes ago, Little Nyx said:

Thank you, MissAnna! Your support means a lot to me. I like the idea of naming my heating pad. I generally just refer to mine as my bestest pal.

Remember my door is always open if you ever need to talk

And aww yes William is a rather jolly fellow of mine 🤭

[Daddy Bear 77]

Let me message you so I can ask what you are dealing with and I'll ask my Sifu what he suggests though to get the power that will allow you to compensate you might need in person lessons from someone and it takes a little while to develop it. 

3 hours ago, Little Nyx said:

Thank you for your kind words, DaddyBear77.

I try very hard not to compare myself to others or how I used to be, but sometimes those thoughts worm their way in, especially when I'm feeling exceptionally low. I'm actually quite proud of myself for stopping when I did. Not too long ago I would have attempted to keep pushing even while knowing I shouldn't. 

I used to do yoga, and I know I need to get back into it, as much as I can. It really did help. I've been intrigued with Tai Chi for a while, but haven't really looked too deeply into it. It's far too easy to back burner things when I'm struggling day to day, even things that I know could be beneficial. Are there any websites or videos you would recommend? While in-person activities are often best, they just aren't a viable option for me.

 

[Lil_K47]

I can definitely relate!  I’ve had two low back surgeries and a hip replacement and I’m only 47.  Now I’m having issues with foot drop, that could lead to a third back surgery!

 

I don’t have any wise words of wisdom. Just know you’re being thought of and I’m sending hugs!! 🥰🥰🤗🤗

[BabyPoppy]

Im so sorry you're dealing with this! I've struggled with similar issues my entire life, off and on... it is so difficult to wonder and watch life seem so effortless for everyone else... it is not an easy path you are on. I know yoga and rest has helped me a lot! Finding the source of the problem is do difficult,  but necessary for appropriate treatment too. I am sending you positive thoughts and a virtual hug! 

[Little Nyx]

16 hours ago, Lil_K47 said:

I can definitely relate!  I’ve had two low back surgeries and a hip replacement and I’m only 47.  Now I’m having issues with foot drop, that could lead to a third back surgery!

 

I don’t have any wise words of wisdom. Just know you’re being thought of and I’m sending hugs!! 🥰🥰🤗🤗

Ooooo, {painful cringe} those are all really tough surgeries! I'm so sorry to hear you have had to go through that, and may be facing a third back surgery. I hope you are able to come up with an alternative that is less invasive and easier on your body. 

[Little Nyx]

19 hours ago, Daddy Bear 77 said:

Let me message you so I can ask what you are dealing with and I'll ask my Sifu what he suggests though to get the power that will allow you to compensate you might need in person lessons from someone and it takes a little while to develop it. 

 

Messages are welcome. Thank you. 

[Little Nyx]

7 hours ago, BabyPoppy said:

Im so sorry you're dealing with this! I've struggled with similar issues my entire life, off and on... it is so difficult to wonder and watch life seem so effortless for everyone else... it is not an easy path you are on. I know yoga and rest has helped me a lot! Finding the source of the problem is do difficult,  but necessary for appropriate treatment too. I am sending you positive thoughts and a virtual hug! 

Thank you. I've been chasing sources for many years and all I've been given are catch-alls. Some are neurological, some are auto immune, but nothing that can be pointed to and said "this is the cause." Just a lot of tests that come back showing nothing and a lot of experimenting and "well, that didn't work, so lets give this a try" or worse, the dreaded brush off and look that says they think I'm just making everything up.