Jump to content
DDlg Forum & Community Welcome home !

Recommended Posts

Posted

Hello all I'm new to the ddlg forum and I would like to ask for some advice . My little and partner of 23 years has recently become blind after having a tumor removed from her brain. She is doing well recovering but the loss of sight has been extremely hard on her and she has been especially upset and frustrated that she can no longer play in the same ways she used to in littlespace (coloring painting watching cartoons etc). I was wondering if there were any others dealing with similar disabilities or if anyone had any advice or suggestions on activities she could do to help her into her little headspace. I want to do everything I can for her and any suggestions and or advice would be wholeheartedly welcome . Thanks for reading and responding.

  • Like 2
  • Hugs 3
Posted

Hello! hi! Friendly neighbourhood Soul here! first off, much love and respect to you both. What you’re navigating right now is heavy, and it takes a special kind of strength to show up for your little in a time like this.

When a little loses their sight, it’s not just the world around them that changes, it can shake the very core of where they find safety and play. But little space isn’t gone, I promise!, it just needs a new doorway.

Here are a few things that might help:

1. Build Little Space Through the Other Senses
Sight may be gone, but little space can bloom through sound, touch, scent, and imagination.

Use calming music or recordings of your voice reading her favorite stories. Give her plushies and blankies with different textures. Introduce comforting scents like lavender or cotton candy! something that screams “I got you.”

2. Make Your Voice Her Safe Place
Speak more often. Narrate what’s around her. Let her know you’re there. Your tone, your words, the silly things you say, they all help rebuild that mental playground.

3. Create a Safe Routine She Can Control
Think a tactile “little kit” she can explore by feel, paci (if appropriate), snacks, lotion, maybe a stuffie or two—all labeled with raised lettering or textures. Daily rituals are magic now. “Morning check-in with you” could be her grounding spell.

4. Enchant the World Again
She’s learning to feel safe in a new way. Make it magical. Her cane? That’s not a mobility aid! it’s now her enchanted staff.

You guiding her? You’re not just helping! you’re the narrator of her fairy tale.

5. Be Gentle With Yourself Too
You’re not expected to get it all right immediately. The fact that you’re reaching out shows your heart’s in the right place. Just keep showing up with love and creativity, she doesn’t need perfection. She needs you.

If you ever need help thinking up little-space-friendly sensory activities or want help building a “care plan,” ask for help. You're not in this alone.

You've got this. And she's lucky to have you.

  • Love button 3
  • 100 percent yes 1
  • Thank You 1
Posted

Thank you so much soul for your kind words and suggestions. I have been doing many of these things such as narrating films and shows between dialogue and I got her a new weighted stuffie who she loves. I forgot to mention in my original post that she has also lost her sense of smell so she is really going through the ringer having lost two senses. We have been together for 23 years and have weathered many ups and downs but this is definitely one of the hardest changes we have been through. It was very recent that we found out her sight would not recover so we are in the beginning stages of this journey she is starting therapy again and will be taking classes at the institute for the blind to learn braille .in the meantime we have been taking it day by day and it is really nice to have some encouraging words.thanks again soul.

  • Like 2
  • Love button 1
Posted

That’s all you can do my friend one day at a time 

  • Love button 1

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×
×
  • Create New...